Monday, November 18, 2013

This is Autism (Erica A. Wise

Written by Erica A. Wise

"This is the week America will fully wake up to the Autism Crisis.
If three million children in America one day went missing--what would we as a country do?"

These are the opening lines of Suzanne Wright's call to action for Autism Speaks policy and action summit in Washington this week.  Later in her call to arms, she says things like "These families are not living."  "This is autism.  Life is lived moment to moment...in despair...in fear of the future."

I want to set the record straight.  Our family is living, our lives are not full of despair, nor do we fear the future.  Life is lived with an appreciation of moment to moment that I wish I could have gotten when I was an anxious twenty something, biting my nails about my own future.  Most of all, my two autistic, unusual kitties are not missing.  If anything they are more present, most definitely here, living life loudly, messily, sometimes joyfully, pretty much like the more typical children of my acquaintance, except maybe sometimes a little more so. 

I'm not going to surround our lives with pretty sparkles.  That loud and messy part is definitely sometimes too loud, too messy.  My kids need supports that most of the other kids can do without and the struggles of each age are often more intense.   Being their parent is a challenging job.  So much of what is difficult though, is dealing with a society that isn't sure how to deal with them.  I won't say our lives are just exactly like the lives of the more typical families around us.  But they are our lives, our busy, hectic, frustrating, interesting, funny lives.  In that way we are just like the millions of other families with kids in this country.

That is the reason to have a national plan, because we are a part of this nation, and we deserve a voice.  We deserve a voice that doesn't believe that the nation would be better served by making sure there aren't more kids like mine.  A voice that that thinks telling the world that we are a burden, a cause for despair, and a scourge or an epidemic is somehow helpful to us.  In case it isn't obvious, it's not helpful.   My children, their parents, and autistic people throughout the nation have plenty to contribute.  Every person has the ability to change the world for the better, autistic or not.  I hope we can support champions who are in favor of finding ways to help every person share their abilities, without this terrible assumption that somehow we can know what that contribution will be, before a child is even grown, before an adult life has been fully lived.

So, to me, saying "This is Autism" is the same as saying "This is our lives".  Autism is children who meow and hiss at me when they are angry.  Autism is a little boy who has a plastic dinosaur for a buddy.  Autism is feeling like red touches your soul.  Autism is knowing that in the future you are going to invent the most awesome thing ever.  Autism is worrying that your children are going to be mad scientists who rule the world.  Autism is thinking they might also be the super-heroes who save the world.  Autism is needing to go into a quiet room to talk to a friend.  Autism is knowing the importance of that friend.  Autism is hearing that far away sound that no one else hears yet, and letting the group know the train is coming. Autism is feeling like you will never see again if the flash bulb goes off. Autism is knowing exactly where all the light switches are, even though you've only been here once before.   Autism is having so much energy you have to just shoot yourself straight up into the air like a rocket.  Autism is feeling so tired that you just need to lie down right here.  Autism is not always understanding what people mean when they say things.  Autism is sometimes understanding just what people mean down underneath everything they are saying.   It's living our lives. For me it's also raising our children.  The real children that we do have, not the ones we imagined might appear, but the kids that are living right here.  Autism is being human, and both the same and a little different than everyone else who is human. 


4 comments:

  1. Dogs have been proven to be a positive feature for children with autism and their family. These well-trained dogs can provide relieve as well as calm children who suffer. An Autism Assistance Dog or Autism Service Dog can change the lives of a family you just have to visit houlton institute

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  2. WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.
    my son have been a patient of autism . I had tried a lot of anti viral med prescribed to me by doctors over how many years now but I could not see any improvements in my son symptoms. One day while going through the internet , i got to know about this great Herbal Dr who uses his herbal remedies in curing people from autism,quickly i contacted him and he prepared a herbal medication for my son which i received and he used it as instructed by dr williams. After few weeks the improvement were very visible. the speech delay and the poor eye contact stopped, I would recommend this to all my friends,families,around the globe suffering from autism.you can contact him through his email on drwilliams098765@gmail.com.for advice and for his product THANKS TO YOU ONCE AGAIN DR WILLIAMS

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  3. I am Sophie from Canada, I once suffered from a terrible and Chronic autism ,since i was bone , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 31 years which result to epilepsy, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Kate on how his son was been cured from autism through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months and two weeks as prescribed by dr williams and i was totally cured of autism within those week of usage,on thin now i have not experience any sign or characteristics again . for more information you can visit his blog autismepilepsy.blogspot.com for help

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  4. As a sign of gratitude for how my son was saved from autism, i decided to reach out to those still suffering from this.
    My son suffered autism in the year 2013 and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he always have difficulty with communication, , and he always complain of poor eye contact . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to autism . I never imagined autism has a natural cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months time he was fully okay even up till this moment he is so full of life.autism has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my story

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